Rare Ireland is the only organisation in Ireland set up to specifically support families living with rare conditions. Set up by two mothers of children with rare chromosome disorders and run by a committee of rare disease parents, we know first hand the the difficulties and the joys of raising rare children. Every family is unique and we offer supports based on the needs of each individual family. We strive to raise awareness of our children’s rare conditions, celebrate milestones and show the public the beautiful faces of rare disease in Ireland.