Rare Ireland Information Day & Conference September 2022
This was our first big event and the first conference in Ireland that facilitated rare disease parents, professionals and patient groups.
We had talks from parent support groups, Rare disease researchers, individuals and family members living with rare conditions and Dr. Anand Saggar, Genetic Consultant who travelled from London to be with us.
It was a huge success! We are so overwhelmed by all the amazing feedback we have received. Our attendees received information, guidance and inspiration from speakers, information stands and other people walking similar paths.
Meet one of our members Alanna.
Last year on Rare Disease Day February 28th 2021 when Alanna was celebrating virtually due to Covid. This year raise a glass and join us in the celebrations on February 28th 2022 and celebrate Rare conditions across Ireland and the World with Alanna and her friends!