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RARE IRELAND

INFORMATION DAY & CONFERENCE DAY 2023

RARE IRELAND INFORMATION DAY & CONFERENCE SEPTEMBER 2022

This was our first big event and the first conference in Ireland that facilitated rare disease parents, professionals and patient groups.
We had talks from parent support groups, Rare disease researchers, individuals and family members living with rare conditions and Dr. Anand Saggar, Genetic Consultant who travelled from London to be with us.
It was a huge success! We are so overwhelmed by all the amazing feedback we have received. Our attendees received information, guidance and inspiration from speakers, information stands and other people walking similar paths.

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