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Nominate Rare Ireland
Help us help others
It’s been a busy year at Rare Ireland Family Support Network We want to express our gratitude & sincere thanks to all the generous donations, fundraisers & individual efforts people have made to help us achieve our goals. We are striving to make a difference to families who have rare conditions & diseases.
Just some information about us;
We provide a safe space for parents within our network to engage with
other rare parents.
We aim to put families of children with the same rare condition in contact with each other.
We send gift boxes to rare children during hospital stays.
We subsidise therapies, equine therapy & genetic counselling for members.
We link in with other rare disease organisations & work together
in an effort to improve care pathways for people living with rare
We keep our social media platforms extremely active, raising awareness
& promoting acceptance & acknowledgment of our rare community.
Please consider Rare Ireland Family Support Network if you are nominating a partner charity for this coming year in your workplace. It would greatly enable us to do more to benefit our members & promote awareness of rare diseases & conditions. Currently there is an estimated 10000 plus rare diseases & the majority of them develop in childhood.
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